Today was not about Tay-Sachs

My good friend Danny How (who is doing the 13 marathons in 13 months challenge with me for The CATS Foundation) send me an email the other day titled “Another mountain, another thought for Amelie”. I opened it wondering what it could be about as his normal emails rarely have a title and are usually [...]

We have somewhat neglected this blog for the past few months as we have been busy with setting up The Cure & Action for Tay-Sachs (CATS) Foundation. So, one of our New Years Resolutions for 2012 is to get back to updating this blog regularly! So, we will start with Christmas – this year we [...]

Deborah posted this link on her facebook page a few days ago and when I read it I knew way too well why she did it… – What I Would Tell You. I was transported to that awful week when our world collapsed, the place became real here in my living room, I could even [...]

Travel website TripBase.com is currently running a web series where people are asked to dig out old posts, in answer to seven fixed questions. Steve who is one of the patrons for The CATS Foundation was kind enough to nominate us through his own blog You’re Not from Round Here. Take a read of it [...]

I have just come back from my holiday to a very special place. It was to an island called Tresco which is one of the Scilly Islands which sit about 20 miles off of the coast of Land’s End, Cornwall. My Great Aunties Bev, Max and Ade and my Great Uncle Smartie treated me, Mummy [...]

The last few posts I have written have shown all the treats Amélie has been getting and they all seem to be linked to food! So, as a balance I thought I would let you in on how our mornings together usually go and how she actually earns her little luxuries! Pre workout Amélie normally [...]

It has now become a bit of regular thing that Amélie‘s Granddad comes over once a week and takes us out for lunch. There are loads of nice restaurants in Blackheath so she gets to try different food all the time. Gran has been busy the last few times so has been coming over on [...]

As a little treat for Amélie and her mum I sometimes make them something special on a Saturday if they’ve both had a busy week! So, having bought a new jar of Nutella especially for the occasion I thought they both deserved something tasty to wake up to (well, for Patricia to wake up to [...]

Last week I took Amélie for a session of hydrotherapy which went really well and was made better as there were only two of us there. Hydrotherapy is basically physiotherapy in water and as there were only a couple of us it meant we were able to spend longer with the physio and go through [...]

Amélie’s mum has been asked to help out a friend with some work doing a blog for a kids wear company (check it out Their Little World). So, Amélie has been entrusted in their care of her dad! Well, as you can imagine Dad’s are known for spoiling their kids and I’m no different! However, [...]