Today was not about Tay-Sachs

A few days ago I came across this blog post via a friend on Facebook. I read it while I was putting my youngest daughter to bed and it stayed with me –  To parents of small children: Let me be the one who says it out loud - I wanted to let Steve know that [...]

  My dearest (I think she wouldn’t mind me calling her friend) Deborah has just posted the following on Facebook: ‘I am thinking of making Isabella a badge to wear, it would say the following: “My name is Isabella. I am 4. Past 4 and 1/4 and heading for 4 and 1/2. I can hear [...]

Emily Rapp is a writer, she has always been a writer, it is her profession. So when I read the article – Obnoxious Questions People Ask Me About Writing About My Dying Son - I was beyond astonished that she had been asked those questions, but only for a second.. I first ‘met’ Emily shortly after [...]

One of the first parents that contacted me through this website told me, amongst other things, that it must have been lovely to see Amelie grow and develop until the disease started affecting her but she also told me that it must be equally devastating to have to watch all she learnt disappear. At the [...]

  To those who find themselves in a difficult situation it does not take long to realise that ‘divine justice’ is nothing but a myth! Karma is nothing more than a fancy word for certain situations in life are so tremendously sad that it is impossible they would be a ‘pay back’ for anything else. [...]

  Everyday you wake up and your day ahead will be full of questions – What should I wear? What should I have for breakfast? Shall I go out tonight? Having children presents you with a whole new set of questions – What should I dress them in today? Where should we go out ? [...]

  Recently, four very special ladies from Clippers hairdressers in Thetford put themselves through weeks of training in order to complete a team tri-athalon on behalf of Isabella. They asked their customers, friends and families to sponsor them so that Isabella could get to enjoy some more happy times and we get to make some more memories with our [...]

As I walk my daughter in her pram through the park or on my way to run errands or even to appointments you walk past me everyday – you have all sorts of hair colours, heights and shapes. Some of you have children in their prams too, many are riding their scooters and some are [...]

  A long time ago I read somewhere (probably a fashion magazine and therefore this is absolutely made up psychology) that couples tend to get along better when they face a difficult situation than they do when all is easy and simple. The logic behind it was that when a bad situation arises couples tend [...]