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	<title>Comments for Today was not about Tay-Sachs</title>
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	<link>http://www.todaywasnotabouttaysachs.com</link>
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	<lastBuildDate>Fri, 21 Jun 2013 14:42:47 +0000</lastBuildDate>
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		<title>Comment on Tea Party for Tay-Sachs ! by Laura</title>
		<link>http://www.todaywasnotabouttaysachs.com/tea-party-for-tay-sachs/#comment-1438</link>
		<dc:creator>Laura</dc:creator>
		<pubDate>Fri, 21 Jun 2013 14:42:47 +0000</pubDate>
		<guid isPermaLink="false">http://www.todaywasnotabouttaysachs.com/?p=1315#comment-1438</guid>
		<description><![CDATA[Yes white sangria sounds lovely thank you :) x]]></description>
		<content:encoded><![CDATA[<p>Yes white sangria sounds lovely thank you <img src='http://www.todaywasnotabouttaysachs.com/wp-includes/images/smilies/icon_smile.gif' alt=':)' class='wp-smiley' />  x</p>
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		<title>Comment on Tea Party for Tay-Sachs ! by Patricia Durao Lewi</title>
		<link>http://www.todaywasnotabouttaysachs.com/tea-party-for-tay-sachs/#comment-1436</link>
		<dc:creator>Patricia Durao Lewi</dc:creator>
		<pubDate>Fri, 21 Jun 2013 13:42:27 +0000</pubDate>
		<guid isPermaLink="false">http://www.todaywasnotabouttaysachs.com/?p=1315#comment-1436</guid>
		<description><![CDATA[Laura that is fabulous and how lucky are you and we??? I guess you will need some refreshments rather than hot tea ;) Would you like to try a recipe of White Sangria? It is lovely, Spanish and refreshing! Can get the recipe and post here for you!

Thanks for supporting us! x]]></description>
		<content:encoded><![CDATA[<p>Laura that is fabulous and how lucky are you and we??? I guess you will need some refreshments rather than hot tea <img src='http://www.todaywasnotabouttaysachs.com/wp-includes/images/smilies/icon_wink.gif' alt=';)' class='wp-smiley' />  Would you like to try a recipe of White Sangria? It is lovely, Spanish and refreshing! Can get the recipe and post here for you!</p>
<p>Thanks for supporting us! x</p>
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		<title>Comment on Tea Party for Tay-Sachs ! by Laura</title>
		<link>http://www.todaywasnotabouttaysachs.com/tea-party-for-tay-sachs/#comment-1435</link>
		<dc:creator>Laura</dc:creator>
		<pubDate>Fri, 21 Jun 2013 13:20:33 +0000</pubDate>
		<guid isPermaLink="false">http://www.todaywasnotabouttaysachs.com/?p=1315#comment-1435</guid>
		<description><![CDATA[What a great idea .. 
We will hold ours down by the sea in Mallorca .. We can&#039;t wait Laura x]]></description>
		<content:encoded><![CDATA[<p>What a great idea ..<br />
We will hold ours down by the sea in Mallorca .. We can&#8217;t wait Laura x</p>
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		<title>Comment on Tea Party for Tay-Sachs ! by Patricia Durao Lewi</title>
		<link>http://www.todaywasnotabouttaysachs.com/tea-party-for-tay-sachs/#comment-1431</link>
		<dc:creator>Patricia Durao Lewi</dc:creator>
		<pubDate>Fri, 21 Jun 2013 10:33:25 +0000</pubDate>
		<guid isPermaLink="false">http://www.todaywasnotabouttaysachs.com/?p=1315#comment-1431</guid>
		<description><![CDATA[Hawa, holding it at the office is an excellent idea! If you do it more towards the beginning of the month maybe your colleagues would be interested to replicate it to their family and friends and spread the word? ;) 

We are working hard on packs for the decoration and will post soon.

Thanks! x]]></description>
		<content:encoded><![CDATA[<p>Hawa, holding it at the office is an excellent idea! If you do it more towards the beginning of the month maybe your colleagues would be interested to replicate it to their family and friends and spread the word? <img src='http://www.todaywasnotabouttaysachs.com/wp-includes/images/smilies/icon_wink.gif' alt=';)' class='wp-smiley' />  </p>
<p>We are working hard on packs for the decoration and will post soon.</p>
<p>Thanks! x</p>
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		<title>Comment on Tea Party for Tay-Sachs ! by Hawa</title>
		<link>http://www.todaywasnotabouttaysachs.com/tea-party-for-tay-sachs/#comment-1429</link>
		<dc:creator>Hawa</dc:creator>
		<pubDate>Fri, 21 Jun 2013 07:00:58 +0000</pubDate>
		<guid isPermaLink="false">http://www.todaywasnotabouttaysachs.com/?p=1315#comment-1429</guid>
		<description><![CDATA[What a wonderful idea!
I am excited to take part. 

Could I hold mine in the office as I would be likely to get a far better turnout than would be possible in my garden. ...


Thanks x]]></description>
		<content:encoded><![CDATA[<p>What a wonderful idea!<br />
I am excited to take part. </p>
<p>Could I hold mine in the office as I would be likely to get a far better turnout than would be possible in my garden. &#8230;</p>
<p>Thanks x</p>
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		<title>Comment on You are not terrible! by Daniel Lewi</title>
		<link>http://www.todaywasnotabouttaysachs.com/you-are-not-terrible/#comment-1363</link>
		<dc:creator>Daniel Lewi</dc:creator>
		<pubDate>Wed, 05 Jun 2013 15:25:34 +0000</pubDate>
		<guid isPermaLink="false">http://www.todaywasnotabouttaysachs.com/?p=1100#comment-1363</guid>
		<description><![CDATA[I can not believe all these comments people are making to my wife Patricia! You all need to actually read what she said, and not what you think she said.

She was not rude about this guy, she simply had an opinion. Now, you are attacking her for having an opinion and think it is appropriate to come onto her blog and say these quite frankly nasty things.

Take a look in the mirror ladies and actually have a read about what this blog is about. Basically, considering our position as a family, we are very sensitive to people who are rude about their children. I personally cringe whenever I see a father reading a newspaper when he is out with his child having coffee on a Sunday morning (as you know most of you send your husbands out with the kids to have &quot;quality&quot; time on a Sunday morning - this is what they actually do). I get even angrier when I see mothers let their children play computer games at the table at restaurants (most do it) so they don&#039;t make a scene. How about teaching them not to make a scene? I&#039;m not saying you are all like this, it is merely my opinion. However, it is one I generally keep to myself and would never say to your face, even if you were my friend. It is something I would talk about with my wife, at home, in priviate. 

One thing I most definitely would not do is go to a ladies blog which is about her experiences, emotions and feelings of being a mother (a great one at that) to a terminally ill child and make outrageous and quite frankly rude and upsetting comments. Nope, never. Never ever would I do that. Not like you all. I think it&#039;s because I have respect, morals and most importantly compassion. Also, you have no idea what it is like to watch your child slowly die in front of you. You should probably read up about Tay-Sachs and actually what happens to a child suffering from it. You won&#039;t understand what we as a family are going through (that is imposible unless your child is suffering from something similar), but I would like to think you may keep your smartarse comments to yourself afterwards

Before you say &quot;oh, you are just making it about your terminally ill child&quot; I beg to differ. Rather than be negative about life (like this Steve fella and yourselves) we have looked at the positives and do many fun things together. Oh, and we also set up a charity which provides support to other families affected by the disease. Now, if those of the actions of negative, self-centered and opinionated people then I don&#039;t know where we have gone wrong.]]></description>
		<content:encoded><![CDATA[<p>I can not believe all these comments people are making to my wife Patricia! You all need to actually read what she said, and not what you think she said.</p>
<p>She was not rude about this guy, she simply had an opinion. Now, you are attacking her for having an opinion and think it is appropriate to come onto her blog and say these quite frankly nasty things.</p>
<p>Take a look in the mirror ladies and actually have a read about what this blog is about. Basically, considering our position as a family, we are very sensitive to people who are rude about their children. I personally cringe whenever I see a father reading a newspaper when he is out with his child having coffee on a Sunday morning (as you know most of you send your husbands out with the kids to have &#8220;quality&#8221; time on a Sunday morning &#8211; this is what they actually do). I get even angrier when I see mothers let their children play computer games at the table at restaurants (most do it) so they don&#8217;t make a scene. How about teaching them not to make a scene? I&#8217;m not saying you are all like this, it is merely my opinion. However, it is one I generally keep to myself and would never say to your face, even if you were my friend. It is something I would talk about with my wife, at home, in priviate. </p>
<p>One thing I most definitely would not do is go to a ladies blog which is about her experiences, emotions and feelings of being a mother (a great one at that) to a terminally ill child and make outrageous and quite frankly rude and upsetting comments. Nope, never. Never ever would I do that. Not like you all. I think it&#8217;s because I have respect, morals and most importantly compassion. Also, you have no idea what it is like to watch your child slowly die in front of you. You should probably read up about Tay-Sachs and actually what happens to a child suffering from it. You won&#8217;t understand what we as a family are going through (that is imposible unless your child is suffering from something similar), but I would like to think you may keep your smartarse comments to yourself afterwards</p>
<p>Before you say &#8220;oh, you are just making it about your terminally ill child&#8221; I beg to differ. Rather than be negative about life (like this Steve fella and yourselves) we have looked at the positives and do many fun things together. Oh, and we also set up a charity which provides support to other families affected by the disease. Now, if those of the actions of negative, self-centered and opinionated people then I don&#8217;t know where we have gone wrong.</p>
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		<title>Comment on You are not terrible! by Patricia Durao Lewi</title>
		<link>http://www.todaywasnotabouttaysachs.com/you-are-not-terrible/#comment-1361</link>
		<dc:creator>Patricia Durao Lewi</dc:creator>
		<pubDate>Wed, 05 Jun 2013 09:45:01 +0000</pubDate>
		<guid isPermaLink="false">http://www.todaywasnotabouttaysachs.com/?p=1100#comment-1361</guid>
		<description><![CDATA[Ladies, thank you all for coming and reading my post and as you can see I have approved your comments.
I understand fully what Steve is trying to say on the demands of being a parent as I am one too - therefor border line offensive that you &quot;Mom of 2 young boys&#039; are explaining to me how it feels.
Also please note that although I do not agree with Steve on the way he sees parenthood to some respect I did not go to his blog and called him &#039;judgemental&#039; on the parents that tell him to enjoy it because they believe in that.
So as I respect you all who share Steve&#039;s views you have to respect that I don&#039;t feel the same, I have read and made my view known to Steve via my own space so that in the same way he let others know how you all feel I have let him know how me and others feel towards it. 
I would appreciate that your due respect really is that. I haven&#039;t been disrespectful to anyone or Steve as in fact I haven&#039;t called Steve anything and mentioned several times that he is a good parent and that he seems indeed to be devoted.
I do not complain about my parents on blogs, I will mention to my parents their peculiarities on their face and we make a joke about it and discuss it in a healthy manner as a family, I would not like it to be a blog as I am certain they wouldn&#039;t either.
I think ultimately we are all very different and have to agree to disagree.
To me there is only a universal truth - we are born, we die and life is anything in between.]]></description>
		<content:encoded><![CDATA[<p>Ladies, thank you all for coming and reading my post and as you can see I have approved your comments.<br />
I understand fully what Steve is trying to say on the demands of being a parent as I am one too &#8211; therefor border line offensive that you &#8220;Mom of 2 young boys&#8217; are explaining to me how it feels.<br />
Also please note that although I do not agree with Steve on the way he sees parenthood to some respect I did not go to his blog and called him &#8216;judgemental&#8217; on the parents that tell him to enjoy it because they believe in that.<br />
So as I respect you all who share Steve&#8217;s views you have to respect that I don&#8217;t feel the same, I have read and made my view known to Steve via my own space so that in the same way he let others know how you all feel I have let him know how me and others feel towards it.<br />
I would appreciate that your due respect really is that. I haven&#8217;t been disrespectful to anyone or Steve as in fact I haven&#8217;t called Steve anything and mentioned several times that he is a good parent and that he seems indeed to be devoted.<br />
I do not complain about my parents on blogs, I will mention to my parents their peculiarities on their face and we make a joke about it and discuss it in a healthy manner as a family, I would not like it to be a blog as I am certain they wouldn&#8217;t either.<br />
I think ultimately we are all very different and have to agree to disagree.<br />
To me there is only a universal truth &#8211; we are born, we die and life is anything in between.</p>
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		<title>Comment on You are not terrible! by Patricia Durao Lewi</title>
		<link>http://www.todaywasnotabouttaysachs.com/you-are-not-terrible/#comment-1362</link>
		<dc:creator>Patricia Durao Lewi</dc:creator>
		<pubDate>Wed, 05 Jun 2013 09:45:01 +0000</pubDate>
		<guid isPermaLink="false">http://www.todaywasnotabouttaysachs.com/?p=1100#comment-1362</guid>
		<description><![CDATA[Ladies, thank you all for coming and reading my post and as you can see I have approved your comments.
I understand fully what Steve is trying to say on the demands of being a parent as I am one too - therefor border line offensive that you &quot;Mom of 2 young boys&#039; are explaining to me how it feels.
Also please note that although I do not agree with Steve on the way he sees parenthood to some respect I did not go to his blog and called him &#039;judgemental&#039; on the parents that tell him to enjoy it because they believe in that.
So as I respect you all who share Steve&#039;s views you have to respect that I don&#039;t feel the same, I have read and made my view known to Steve via my own space so that in the same way he let others know how you all feel I have let him know how me and others feel towards it. 
I would appreciate that your due respect really is that. I haven&#039;t been disrespectful to anyone or Steve as in fact I haven&#039;t called Steve anything and mentioned several times that he is a good parent and that he seems indeed to be devoted.
I do not complain about my parents on blogs, I will mention to my parents their peculiarities on their face and we make a joke about it and discuss it in a healthy manner as a family, I would not like it to be a blog as I am certain they wouldn&#039;t either.
I think ultimately we are all very different and have to agree to disagree.
To me there is only a universal truth - we are born, we die and life is anything in between.]]></description>
		<content:encoded><![CDATA[<p>Ladies, thank you all for coming and reading my post and as you can see I have approved your comments.<br />
I understand fully what Steve is trying to say on the demands of being a parent as I am one too &#8211; therefor border line offensive that you &#8220;Mom of 2 young boys&#8217; are explaining to me how it feels.<br />
Also please note that although I do not agree with Steve on the way he sees parenthood to some respect I did not go to his blog and called him &#8216;judgemental&#8217; on the parents that tell him to enjoy it because they believe in that.<br />
So as I respect you all who share Steve&#8217;s views you have to respect that I don&#8217;t feel the same, I have read and made my view known to Steve via my own space so that in the same way he let others know how you all feel I have let him know how me and others feel towards it.<br />
I would appreciate that your due respect really is that. I haven&#8217;t been disrespectful to anyone or Steve as in fact I haven&#8217;t called Steve anything and mentioned several times that he is a good parent and that he seems indeed to be devoted.<br />
I do not complain about my parents on blogs, I will mention to my parents their peculiarities on their face and we make a joke about it and discuss it in a healthy manner as a family, I would not like it to be a blog as I am certain they wouldn&#8217;t either.<br />
I think ultimately we are all very different and have to agree to disagree.<br />
To me there is only a universal truth &#8211; we are born, we die and life is anything in between.</p>
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		<title>Comment on You are not terrible! by Mom of 2 young boys</title>
		<link>http://www.todaywasnotabouttaysachs.com/you-are-not-terrible/#comment-1360</link>
		<dc:creator>Mom of 2 young boys</dc:creator>
		<pubDate>Wed, 05 Jun 2013 06:46:38 +0000</pubDate>
		<guid isPermaLink="false">http://www.todaywasnotabouttaysachs.com/?p=1100#comment-1360</guid>
		<description><![CDATA[Patricia, I think you missed the point of Steve&#039;s article COMPLETELY. He is describing the feelings that every other parent of young kids feel from time to time. Small kids are very demanding and can leave parents exhausted at the end of the day. This is compounded when you have a child who&#039;s personality is such that he likes things done in a very specific way (my 7 yr old son is exactly the same). It&#039;s physically and mentally exhausting. I still love him with all my heart and certainly don&#039;t take him for granted, but there are days that I just need a break from him...for the sake of both of us! Steve was not complaining about the fact his kids are the way they are...little and demanding...he was speaking honestly about the limits that every parent reaches. Parents are not machines that can give and give and give all the time. Sometimes we reach a limit and we just need a break. The fact that so many parents can relate to his article proves that we all feel this way, and we actually GOT what he was saying. There&#039;s far too much judgement in your article...honesty met with reality goes a long way!]]></description>
		<content:encoded><![CDATA[<p>Patricia, I think you missed the point of Steve&#8217;s article COMPLETELY. He is describing the feelings that every other parent of young kids feel from time to time. Small kids are very demanding and can leave parents exhausted at the end of the day. This is compounded when you have a child who&#8217;s personality is such that he likes things done in a very specific way (my 7 yr old son is exactly the same). It&#8217;s physically and mentally exhausting. I still love him with all my heart and certainly don&#8217;t take him for granted, but there are days that I just need a break from him&#8230;for the sake of both of us! Steve was not complaining about the fact his kids are the way they are&#8230;little and demanding&#8230;he was speaking honestly about the limits that every parent reaches. Parents are not machines that can give and give and give all the time. Sometimes we reach a limit and we just need a break. The fact that so many parents can relate to his article proves that we all feel this way, and we actually GOT what he was saying. There&#8217;s far too much judgement in your article&#8230;honesty met with reality goes a long way!</p>
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		<title>Comment on You are not terrible! by cfg</title>
		<link>http://www.todaywasnotabouttaysachs.com/you-are-not-terrible/#comment-1336</link>
		<dc:creator>cfg</dc:creator>
		<pubDate>Fri, 31 May 2013 22:09:55 +0000</pubDate>
		<guid isPermaLink="false">http://www.todaywasnotabouttaysachs.com/?p=1100#comment-1336</guid>
		<description><![CDATA[Hi Patricia,

With all due respect, you are being judgmental towards Steve and you are comparing your life and experience with his.

Steve never complained about who his children were as people.  He was talking about the universal frustration that parents have with people telling them that they need to enjoy every moment they have with their children.  This is impossible.  You can love your children and not take them for granted and still not enjoy being with them all the time.

You&#039;ve accused Steve of taking his children for granted, and that is a very harsh accusation.  It is also judgmental.  Children grow up and complain about their parents ALL THE TIME.  It&#039;s a fact of life.  People complain about their family, and it has nothing to do with anybody taking anyone for granted.

I hope that you&#039;re able to realize this and realize that your reaction is stemming from your experience as a parent, not from some universal truth.]]></description>
		<content:encoded><![CDATA[<p>Hi Patricia,</p>
<p>With all due respect, you are being judgmental towards Steve and you are comparing your life and experience with his.</p>
<p>Steve never complained about who his children were as people.  He was talking about the universal frustration that parents have with people telling them that they need to enjoy every moment they have with their children.  This is impossible.  You can love your children and not take them for granted and still not enjoy being with them all the time.</p>
<p>You&#8217;ve accused Steve of taking his children for granted, and that is a very harsh accusation.  It is also judgmental.  Children grow up and complain about their parents ALL THE TIME.  It&#8217;s a fact of life.  People complain about their family, and it has nothing to do with anybody taking anyone for granted.</p>
<p>I hope that you&#8217;re able to realize this and realize that your reaction is stemming from your experience as a parent, not from some universal truth.</p>
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